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Student Project Scholarships

2019–2020 ADHCE Scholarships

ADHCE awarded two scholarships supporting disability-focused education and research.

The two scholarship projects were presented at the ADHCE Annual Meeting on June 4, 2020.

2019–2020 Scholarship Recipient

Neurodiversity Allies (NDA)

Rush University · Chicago, Illinois

Interdisciplinary student-led community service initiative with leadership oversight provided by Dr. Molly Bathje, Assistant Professor in the Department of Occupational Therapy.

Neurodiversity Allies (NDA) is an interdisciplinary, student-led initiative designed to support individuals with intellectual and developmental disabilities (IDD) while they receive health care services at Rush University Medical Center and to strengthen health professions students' knowledge and experience with people with IDD.

NDA includes students from Rush University's College of Medicine, College of Nursing, and College of Health Sciences. Members volunteer in hospital, ambulatory clinic, and outpatient settings, providing support, socialization, and comfort to patients with IDD.

Scholarship Project

Disability Education Series for Health Professions Students

The project proposed an educational series to address gaps in health professions students' knowledge and familiarity with caring for people with intellectual and developmental disabilities.

The overall goal was to increase students' knowledge and confidence in providing respectful, patient-centered care for people with disabilities.

Alignment with ADHCE Core Competency 2

The educational series focused on Professionalism and Patient-Centered Care. It addressed assumptions and biases about patients with disabilities while emphasizing professionalism, communication, respect, patient perspectives, and equitable care.

Six-Month Educational Series

Each approximately one-hour session addressed a different aspect of ADHCE Core Competency 2 and incorporated education, discussion, and perspectives from people with lived experience.

  1. Implicit bias and respectful care. Students examined assumptions and implicit biases and learned strategies for approaching patients with respect and humility.
  2. Patient perspective. A young adult with Down syndrome discussed their health care experiences with participating students.
  3. Communication and trust. Students explored strategies for building trusting relationships with patients, parents, and caregivers, including understandable and person-first language.
  4. Caregiver perspectives. A panel of caregivers shared concrete examples of successful relationships with health care professionals.
  5. Sensory supports. Students received training on selecting and using sensory items during interactions with patients with IDD.
  6. Power dynamics and advocacy. The series concluded with discussion of how power dynamics influence care and strategies for providing patient-centered and equitable care.

Building a Community of Allies

Students completing the educational series were intended to leave with greater awareness of their own assumptions, increased understanding of the needs of people with IDD, and greater confidence advocating for equitable care.

Students attending all sessions would receive a pin for their Rush identification badge identifying them as an ally alongside the IDD community.

2019–2020 Scholarship Recipient

Melissa Desroches

Mixed-Methods Nursing Research Project

Scholarship Project

Barriers and Facilitators to Quality Medical-Surgical Nursing Care of Adults with Intellectual Disability

This mixed-methods study, using an internet survey with nested qualitative interviews, was designed to identify perceived barriers and facilitators to quality medical-surgical nursing care for adults with intellectual disability (ID).

Why This Research Matters

People with intellectual disabilities experience substantial health disparities related to hospital care. The project proposal identified concerns including higher rates of hospitalization, hospital admissions for conditions that might otherwise be managed in outpatient settings, longer lengths of stay, increased safety risks, negative provider attitudes, and inadequate preparation of health care professionals to care for people with ID.

The investigators identified an important gap in the literature: despite the central role of medical-surgical nurses in hospital care, there was limited research examining the attitudes and experiences of medical-surgical nurses caring for adults with intellectual disability in the United States.

Research Goal

By exploring the experiences of medical-surgical nurses, the study aimed to inform multidisciplinary educational and quality-improvement interventions designed to improve hospital care for adults with intellectual disability.

Research Team & Mentorship

  • Denise Daudelin, RN, MPH — Co-investigator, primary research mentor, and Director of Research Process Improvement at Tufts CTSI.
  • Janis Breeze, MPH — Statistical mentor and Associate Director of the Biostatistics, Epidemiology, and Research Design Center at Tufts CTSI.
  • Dr. Kathleen Fisher — Co-investigator, intellectual disability nursing researcher, and Professor in the College of Nursing and Health Sciences at Drexel University. Dr. Fisher was to assist with qualitative data analysis.

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Contacts

General Inquiries:  adhce.org@gmail.com
Membership Dues / Donations:  Andrew Symons


About the Alliance

The Alliance for Disability in Health Care Education, Inc. (ADHCE), is a '501(c)(3) Public Charity' organization of healthcare educators and professionals who are working to integrate disability-related content and experiences into healthcare education and training programs.

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